Seven-year-old Fletcher was born with an ultra-rare disease, BBSOAS, and finally got a diagnosis this month

Ever since seven-year-old Fletcher Halpin was born, his family has been searching for a diagnosis to explain his rare combination of symptoms.

He has a visual impairment, developmental delay, a mild intellectual disability and an intense love of music.

The answer came just a fortnight ago.

Fletcher was diagnosed with an ultra-rare disease, only discovered in 2014.

Just 54 people in the world are known to have Bosch Boonstra Schaaf Optic Atrophy Syndrome (BBSOAS).

Fletcher’s parents, Kellie and John Halpin, describe Fletcher as…