Noosa News
The heartbreaking reality of childhood dementia
The beloved son and brother from Warner, in the Moreton Bay region, had Sanfilippo Syndrome, a rare form of childhood dementia that causes progressive brain damage.There is currently no cure or approved treatment and the life expectancy for children with the degenerative condition is 12 to 20 years.Experts believe there are less than 100 cases in Australia.Mum Julie Bevan said she had never heard of Sanfilippo before Noah was diagnosed at age six, after the family went looking for answers to explain…
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