The Canberra Hospital unveils upgrades to its paediatric high care ward to help babies like Leo recover

Rachael Guymer was 12 weeks pregnant when doctors told her the baby had a condition she had never heard of.

Leo, now four months old, was diagnosed with gastroschisis, where an opening, or stoma, develops in the abdominal wall.

It causes the bowel to push through the opening and develop outside the body.

Soon after his birth, Leo underwent surgery and has since had two more.

Next week, he will have yet another operation, to reverse his stoma.

‘It’s been a journey’