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Dying patients with rare diseases struggle to get experimental therapies – News-Medical.Net

At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure…

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At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease.
“There’s lots of things that she used to be able to do just fine,”…

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