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CDISC, NORD announce partnership to develop global data standards for rare diseases – News-Medical.Net
CDISC and the National Organization for Rare Disorders have announced a partnership to develop global data standards for rare diseases.
CDISC and the National Organization for Rare Disorders (NORD®) have announced a partnership to develop global data standards for rare diseases. The data standards will be released in a Therapeutic Area User Guide that will be available at no cost on the CDISC website for researchers to leverage in studies to maximize data’s full potential.
According to the FDA, any disease, disorder, illness or condition affecting fewer than 200,000 people in the United States is considered rare. There are approximately…
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