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Boy becoming ‘entombed in his own body’ in only known case of horrific disease – Yahoo News Australia
He is the 41st documented case ever in the world, and the only active case in the world today, as far as doctors know.
A teenage boy who is turning to stone has been warned he’ll become entombed in his own body if a cure isn’t found.
Jaiden Rogers, 15, is thought to be the only person in the world with Stiff Skin Syndrome, a disease which causes the skin to harden, leaving him confined to a wheelchair and at risk of organ failure as his stone-like skin presses on his lungs and heart.
The boy was diagnosed in 2013 after his mum Natalie, 54, found a lump of hard skin on his thigh which quickly spread to his legs…
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