Batten disease: Saylah was a happy toddler until she was diagnosed with rare genetic condition

Saylah Moylan-Starkey was a happy and cheeky toddler until one day her parents noticed something was off.

In June the then-one-year-old, who lives near the Whitsundays, Queensland, suddenly stopped responding to her name, speaking and using her hands.

Her condition only got worse but, despite…