Families with ‘bond deeper than blood’ unite to find cure for rare disease SPG56

It’s a cosy scene in the Whitrod home, with the family of four nestled on a rug as they play with a wooden shop.

Tallulah Moon is taking coffee orders — and taking charge.

The sassy six-year-old demands dad pays first before he receives his imaginary beverage, and gets him to tap his phone on a…