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‘100% fatal’: Family’s fight to save boy, 12, with ‘kids Alzheimer’s’ – Yahoo News Australia
A family is fighting to save their eldest son’s life after the 12-year-old was diagnosed with a rare fatal syndrome.
A family is fighting to save their eldest sons life after the 12-year-old was diagnosed with a rare, fatal syndrome likened to Alzheimers.
Connor Dobbyn, who lives in Pennsylvania with mum Marisa DiChiacchio and dad Mike Dobbyn, was diagnosed with Sanfilippo Syndrome Type 3C in April 2019 after his family noticed continuing issues with his speech development.
The parents, who also have a younger son, are now rallying around him to raise US$3 million for a clinical trial that could save his life.
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